Patient stories

Dylan’s story

In early 2017, Dylan was diagnosed with an early stage Melanoma Skin Cancer from years out in the sun without adequate sun protection, playing football, travelling etc. in his youth and 20’s. Thankfully it was caught early and now, Dylan chooses to use that experience as both a wakeup call and vehicle for creating positive

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Trevor Chaston with AMRF CEO Julie Calvert

Trevor’s story

I am Trevor Chaston, a retired farmer but still active on a farm at Benayeo Victoria (just across the border from Naracoorte in S.E. South Aust.) I have been a farmer all my life and therefore have spent many hours out in the sun and in the early years without sun protection apart from a

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Ben’s story

My name is Ben Kerslake. On the 19th of November 2014, I underwent a scan for a severe headache. I was immediately admitted to hospital when a golf ball sized tumour in my brain and many other throughout my body were discovered. Following brain surgery to remove the main tumour, I was diagnosed with stage

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Emily’s story

In 2011, 25 year old Emily Clohesy was worried about a mole on her back and went to her doctor to have it checked. It was diagnosed as a stage 3 Melanoma. Emily had to have her lymph nodes removed from her groin and now lives with lymphedema. This is Emily’s account of how her

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Meagan’s story

Saved by a spot-on stranger A tap on the back at the cricket may well have saved Meagan’s Snewin’s life. Meagan, an avid sports fan was at Adelaide Oval in 2012 watching a West Indies Test match with girlfriends when she felt a tap on the back and a male voice said: “Excuse me, I’m

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Kristen’s story

It won’t happen to me. How many times have you said that? How many times have you heard that? We’re not invincible; too often we think we are! So my advice is; know yourself and trust your gut feeling. Listen to your body and for crying out loud if something isn’t right get it checked.

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Karen’s story

I have an aggressive stage IV melanoma skin cancer which has metastasised to my lungs, bones, liver and lymph glands. I was facing my last Christmas with my young children in late 2013. I have three children – 6, 12 and 14 years old. In January 2012 I had a mole removed and was told

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Claude’s story

Hi, my name is Claude and in 1999, I was diagnosed with Metastatic Melanoma. The following four years saw 16 secondary melanomas appear throughout my body and each were removed, including 20% of my right lung and a large part of my bowel. It seemed there was no stopping this disease and it was only

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Leigh’s story

I’ll never forget that feeling when I learned I had melanoma. The sun had risen on a beautiful day. I’d gone for an early walk and was back home, freshly showered and, in the bathroom, towelling off, before I hit the road to Sydney, a 3 hour drive away. My husband leant over, looking at

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Vanessa’s story

Vanessa McPhee is on a mission to save a life by raising awareness of melanoma. She has started her own Facebook page, A Mother’s Melanoma, to help raise awareness of melanoma.Vanessa did her first Melanoma March in Adelaide in 2015 and with her team, raised over $1000 for melanoma research.   After pregnancy with my second daughter, I

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Did you know...

0
PEOPLE DIE FROM
MELANOMA
IN AUSTRALIA
EVERY SINGLE
YEAR
0
NEW CASES OF
MELANOMA
ARE DIAGNOSED
EVERY YEAR
IN AUSTRALIA
0 %
MORE THAN 90% OF MELANOMA CASES CAN BE SUCCESSFULLY TREATED IF DETECTED EARLY
0 %
OF ALL SKIN
CANCER DEATHS
IN AUSTRALIA
ARE FROM
MELANOMA
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Privacy Policy

Australian Melanoma Research Foundation (AMRF) respects and is committed to protecting the privacy of the people whose personal information it collects. We collect personal information about individuals who are employed by us, our donors, our volunteers, other supporters, allied associations, consultants and service providers.

Information we collect

Whenever we collect personal information, we will identify ourselves as AMRF and ensure people are aware of why we are collecting information and how we plan to use it.

The type of personal information AMRF usually collects and holds includes names, addresses, telephone numbers, email addresses, donation date, reason for donation, merchandise orders and other information such as health related information pertaining to AMRF research and program delivery. This information may be collected in person, via our website on the secure payment gateway, as well as other sources.

When people visit our website, or download information from it, the following information is recorded by Google Analytics:

  • Their network location and IP address
  • The date and time of their visit, pages visited, and time spent on each page
  • Referring site details (ie the site and page they came from to arrive at this site)
  • Type of web browser they used
  • Type of operating system they used
  • JavaScript support, screen resolution, and screen colour processing ability

This information is only used for statistical and website development purposes. We make limited use of cookies on our website. We use cookies to improve the functionality of our website, and to remember user preferences when people return.

In the event where an individual shares unsolicited personal information that AMRF would not have collected for the purposes outlined above that information will be destroyed or de-identified as soon as is practicable.

How we use and disclose personal information

We collect and use stakeholder’s personal information to carry out the functions and activities of AMRF and to comply with our legal obligations, to maintain and update our records and to help us manage and provide our services.

We may also use information to ask for support and to keep people informed about the ways in which our donors and supporters help us to make a difference to raise funds for research, awareness and early detection programs.  People have the right to opt out of any communications from AMRF.  This will not stop them receiving receipts and other transactional communications as required by law.

We may disclose personal information to third parties who assist us to perform functions on our behalf (such as commercial mail preparation services, this information is permanently deleted by the provider upon completion of the service and confirmed in writing of such).  These external service providers are under a duty to maintain the privacy and security of your information in line with this Privacy Policy and to use your personal information only for the purpose for which it is disclosed.

AMRF does not use any government related identifiers, such as Medicare numbers or tax file numbers, of an individual as our own identifier.

Marketing and communications

We may use people’s information within AMRF only in connection with marketing and fundraising campaigns. We may provide marketing communications to stakeholders on an ongoing basis by telephone, electronic messages (eg. email), online (including websites and mobile apps) and other means, unless they opt out or we are subject to legal restrictions. These may include communications relating to AMRF and our programs, campaign and promotional messages, event invitations, fundraising opportunities and newsletters.

AMRF also sends transactional communications which include but are not limited to: Donation & Tax Receipts, forgotten password e-mails, event sign up confirmation and confirmations from Web forms.

To opt-out of receiving AMRF marketing communications people can:

  • Select the “unsubscribe” option in one of the marketing communications that they receive from us.
  • Send an email to: admin@melanomaresearch.com.au
  • Call us on 0419 822 969
  • Send a written request to: PO Box 574, Kent Town DC SA 5071

Security of personal information

AMRF regards the security of personal information as a priority and takes a number of precautions to protect people’s personal information from loss, misuse, unauthorised access, modification or disclosure. Specific security precautions are in place for processing online payments through payment gateway providers Stripe and PayPal which include the use of encrypted links, dedicated private connections and Secure Sockets Layer (SSL) encryption. However, the Internet is not a secure environment and although all care is taken, we cannot guarantee the security of information people provide to us via electronic means such as email.

If people become aware of any inaccuracy in the personal information, we hold about themselves, they are encouraged to contact AMRF so we can update any personal information we hold.

Anonymity

Where it is lawful and practicable, we will allow individuals to deal with us on an anonymous basis. For example, if we receive a telephone enquiry, we will not require that the enquirer gives us their name, although depending on the nature of the enquiry, we may not be able to answer it unless they do.

We can also accept gifts and other forms of support anonymously. However, provisions contained in taxation legislation require AMRF to collect the name of the donor if the donor requires a tax-deductible receipt.

Image copyright

AMRF’s reputation and goodwill is extremely important. Permission to use images featured on this website has only been given to AMRF and therefore should not be downloaded or used in any way by a third party without consent.

For information on obtaining permission for an image, please email admin@melanomaresearch.com.au.

Acceptance of terms

If AMRF updates or changes this Privacy Policy, the changes will be made on this page. Your continued use of AMRF’s website following the posting of changes will mean you accept those changes.

Contact us

If you have any questions about privacy-related issues OR you wish to lodge a complaint about a breach of this policy OR other privacy matter OR you do not wish to be contacted by us to ask for your support, please contact us by email at  admin@melanomaresearch.com.au. Alternatively our postal address is below:

AMRF
PO Box 574
Kent Town DC SA 5071

We take your privacy concerns seriously. Where you express any concerns that we have interfered with your privacy, we will respond to let you know who will be handling your matter and when you can expect a further response. We may request additional details from you regarding your concerns and may need to engage or consult with other parties in order to investigate and deal with your issue. We will keep records of your request and any resolution.

For information about privacy generally, or if your concerns are not resolved to your satisfaction, you may contact the Office of the Australian Information Commissioner at www.oaic.gov.au and on 1300 363 992.